SINUSES & CYSTIC FIBROSIS | STARTING ANTIBIOTICS

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100 thoughts on “SINUSES & CYSTIC FIBROSIS | STARTING ANTIBIOTICS”

  • Thank you so much for taking the time to share this with us! We would totally understand if you need a break! So please take care and take your time! Good night from Europe!

  • Weird…. right when you said "wow, it's really raining", it's started POURING here! We are in Northeastern Ontario Canada. So looking forward to seeing your new home in North Carolina…what a wonderful adventure! Love you guys 🇨🇦❤

  • Megan is a gamer says:

    I’m glad that you talked to your team and they prescribed Antibiotics. Even if they don’t work to well. Don’t worry about the vest noise, it’s just a tool you need❤️ Everytime you mention birds you need to add the screaming goat or Peter😂

  • hi guys I hope you guys are doing well and I hope she is well too pry for her to get well 🙏🙏🙏please give me updates on you your amazing sweet women with a great heart 💕 as well as your husband too😘💕💞

  • Sarah Pierman says:

    I was in FL for two months after the loss of my uncle. I was there to help my aunt and cousins adjust and heal (physically and emotionally), but ended up sick making three trips to urgent care. It was frustrating because my chest and lungs were always clear, but my sinuses were inflamed as were my bronchi. They put me on amoxicillin first which didn’t work for me so I got put on Doxy. I just finished it recently. I was also on Methylprednisolone, Prednisone, and Benzonatate through all of it plus Mucinex and Sudafed. Sinus issues SUCK. I’m there with you. Sinus infections and bronchitis are big problems for me. I just finished my antibiotics and feel like my cough is coming back again, but not as bad. I spent a lot of time thanking God that my health is what it is and I’m not facing these challenges daily and chronically as you are. You’re a fighter. I was miserable and wasn’t much help to my aunt and cousins when it came to doing much cleaning or cooking. You’re a trooper, Mary. 💪🏼

  • Janine Schindler says:

    You are so positive! I just love your videos. I understand sinus headaches sinus infections. They are miserable. But I do not have CF. I'm just saying in general. I get them usually in winter but I can tell I'm getting a summer one. Better than the summer flu. Well I hope the medicine works.

  • Tiffany Cothren says:

    Thanks for the $20 off a box. I just put in my order. I have always wanted to try a delivery meal. I am excited to recieve my first box!

  • Anouk Noordeloos says:

    When I'm on oral antibiotics it says in the description that it's normal for fever to get higher at first before it gets lower, so maybe that's why 😉

  • Nancy Edmondson says:

    Do the salt water wash for your sinus cleanse. It heals infections quickly and will get you off antibiotics faster. I do it for allergies and infection .

  • Hi Guys , Peter you have been busy , still best of luck looking + buying a new home. Mary you talked about your sinuses not having anything to do with a lung fix , I get that , would you ever have another sinus surgery , like you did ? , just curious , guys you really need to bring us completely up to date and out of the dark , but at least a Thursday vlog on Thursday is a great place to start !! Whatever is in store for you guys we are here to cheer you on and to listen when you need to vent. God Speed , thanks for the video , take care of Ollie , he looks dog tired 🙂 , CU _ L8er 🙂 Gary 

  • bunnybabe 1330 says:

    I recommend moving to Wakefield in Wake Forest NC. It is a central location. GREAT prices!! Beautiful houses(small to mansion). AMAZING people!!! And, it’s close to duke!

  • This is the first video of watched of yours. You guys are a great couple I can tell. I wanted to say I have the same problem with oral antibiotics as well. I seem to do real well while I'm on them, but once I come off I end up feeling crappy a week later and from there it's back to the hospital a few weeks after. So I can relate to that :/ I also wanted to say I really enjoyed watching this and I'm going to keep watching your videos because it's nice to be able to have some to relate to with CF. Hope you start feeling better!

  • When they had to put your tubes down thru your sinuses multiple times, I thought oh no! she's going to get an infection. So sorry you have to go thru this again. God please bless this sweet lady with fast healing and no complications.

  • Mary, I know you have excellent doctors and I know you get a TON of unsolicited medical advice on here, and I hate getting unsolicited medical advice so I hate being that person who gives it. I have MARCONS. Antibiotic resistant bacteria colonizing my sinuses. Probably pretty close to, or even the same as what's in your sinuses. It's worse than MRSA which I've also had, it's resistant to more antibiotics than MRSA is. Instead of oral antibiotics or the BEG nasal spray I could have done for my MARCONS infection, I found a collodial silver and essential oil nasal spray called OMG Nasal Spray by Dr. Fitt you do not need a prescription for, you just order it off his website and it has worked better than anything any mainstream medicine doctor has given me. I'm actually surprised even though I usually go for the natural stuff before I resort to big pharmacy. I know collodial silver is a great natural antibiotic and I know essential oils work for most things they say they work for but I did not know they were SO effective on antibiotic resistant bacteria. And the best part is, it's completely non toxic and it will not interact or counteract any meds you are already on. Please, just look into it for your sinuses. I know how horrible the headaches are and taking so much Tylenol with your liver is not good at all. I know people that have lost their liver just from using Tylenol.. it's from the heart. I really do care! 💕

  • Kelly's Life As A Recovering Addict says:

    Hope ur doing go today I'm hurting I have lupus and it's cold and rainy here in CT today

  • Jude Dimatteo says:

    Peter is a power human being he loves Mary so much he wants what is best for her so they can live happy and healthy thank ya all for sharing with us peace

  • Ok on the thumbnail that was not the finger I originally thought was being held up and it clickbaited me for a second not gunna lie

  • Karen Fitzpatrick says:

    Be careful not to get too run down. Stress on the body (like being too cold, hungry, sleep deprived) in addition to stress on the mind makes a person a lot more susceptible to coming down with viruses. The last thing you need is for Mary to get sick! Bless you both

  • Omgness.. at first glance of the thumbnail, it looks like Peter is giving the bad finger. Lol. I was shocked for a second. Hahahaha

  • Jessica Donley says:

    U seem so refreshed peter from ur break to north Carolina. Your all smiles 😃 hope u had a wonderful time! North Carolina is beautiful🌟

  • Fralins and Friends says:

    Yeah, after a couple of days on antibiotics I start getting some of the side effects for a couple of days, then I start feeling better. Hoping you have good fortune with the house hunting. 😀👋

  • Tarrant Blake says:

    I have never seen a video with Mary driving. Mentioning that your neighbor picked up meds for you, it started me wondering. Mary do you/can you drive?

  • Although we can’t use Hello Fresh because of a food allergy, I really appreciate the way you “advertise” on your channel. Some channels seem so forced but you can tell you guys genuinely use and enjoy the product!

  • Debbie Martelli says:

    We moved to N.C. from Long Island three years ago. Mary you are going to love watching the Hummingbirds! Oh my……they are my favorite thing about being here! I love and pray for you amazing people!

  • Heather Turner says:

    Its pouring here as I watch this. Praying the antibiotics help you Mary and praying for this next journey for you guys 💚

  • Mary you have inspired me to get creative with my arts and drawing and I have been doing more and more crafts and drawing thank you for being a inspiration to me ! Peter keep Mary healthy and happy 😃 love you guys!

  • I got a Mickey Mouse mini palm tree for a birthday gift when I was in elementary school. Well, that was over 30 years ago and it is still going strong

  • Mary I want to thank you for being so open about what your body is going through, many times l am having a problem or side effect from my treatment and you make an innocent comment and l now have an answer to my treatment. I don't have CF but a chronic infection in my bone for the last 40 years and I learn so much from you. Thank you

  • Carolyn Lyford Sullivan says:

    Hi guys , I am old enough to be your mom . You all are an adorable family . After your lung transplant you will be surprised at the feeling of breathing in air . How easy it is to breathe .

  • Maybe this is a dumb question: did you ever wonder if the use of antibiotics, which are a nessesity for you, lead to the worsening of your infections? Like one of those catch 22s.

  • I am on antibiotics for a sinus infection. Its really messing with my digestive system and making me sick. I can't imagine the side effects of taking so many different antibiotics.

  • Amanda Ulrich My Blind and Chronic Illness Life says:

    Oh I’m so sorry you’re back on antibiotics for sinuses again. I had sinus surgery last August as well and that was horrific! I’m so sorry. If you need advise on certain areas of NC to move just email me! I don’t mind. You two are amazing! Continued prayers!💛🙏💛

  • joanne Pauley says:

    Mary, I love watching 👀the birds. You probably don't remember but I had a wren build a nest and lay eggs in my bag of potting soil on my patio. UPDATE: the eggs have hatched and I have heard the babies but haven't seen them. I don't want to disturb them, but they are keeping mom and dad very busy. All day they are bringing bugs and worms feeding the babies. So interesting watching them. And they sing everytime. Every few minutes. I am watching for the babies to stick a head out. ((((Huggs))). (((Oliver)))

  • I hope the antibiotics kick in soon Mary. It usually takes 2 to 3 days.
    Peter, I love "Birds, succulents and poodles" 😂😂 Love you guys ❤️

  • MARY, MARY, MARY…. please try a wet ice pack over sinus area for 15 min….a few times a day…..it WILL help reduce swelling in there and allow it to drain helping to clear up pressure and infection faster…..

  • Crystal Essex says:

    Wait. You're back already? I'm so confused! Lol. I thought you were just ready to fly out again the last vlog from yesterday.

  • Evelyn Castle says:

    So are you guys filming the day of or a day before as of when you upload? Just wondering? Ily. When you move to NC will your health insurance change? How will you adapt to a new hospital and new CF team from the one you have in MA?

  • beauty for ashes says:

    good neighbors are such a blessing. so glad your neighbor was able to help while Peter was gone. i pray your sinuses start doing better, Mary. so glad you got a good night of sleep, Peter. love you guys.

  • Nancie Blackburn says:

    Peter makes me laugh some times like at that look you gave us when Mary said the rain was cleansing. Mary I hope the antibiotics helps your sinuses get better!

  • I have had sinus problems and 9 surgeries over the years. My lungs are always infected by my bad sinus infections moving down to the lungs. I can do the same thing and hold off on done IV's by taking oral antibiotics for a few weeks, but then almost always requiring me to go into the hospital for IV antibiotics for 3-4 weeks.

  • Mary, I'm not a medical doctor and still one year out from my PhD (hopefully), but my understanding is that in cystic fibrosis patients oral absorption and deliverance of antibiotics to the lungs is not good. So basically, the antibiotics (or any drugs) must go through the digestive tract to the liver (which you have liver disease so that doesn't help) where it is metabolized and transported to the bloodstream (we call it first-pass metabolism) which takes it to the site of action. Because you probably have resistant bugs in your lungs, oral antibiotics and the limit of absorption into the bloodstream means that they can no longer do much for you in your lungs. The bugs in your sinuses probably aren't to that level of resistance yet and still respond to oral antibiotics. As you well know, there is a limit on how much antibiotics they can give you because your kidneys have to excrete it and many antibiotics, unfortunately (like any polymyxins and any aminoglycosides like gentamicin). IV antibiotics have a much higher absorbance since it's going directly into your bloodstream, so while you still have a risk of kidney injury, your absorbance is much higher and is much more effective in your lungs. I hope this kind of helps to answer your question. You're one of the bravest CF / chronic illness fighters I know. You inspire me every day. I love the vlogs!

  • Life Is a Backroad says:

    My ENT finally recommended sinus rinses and a sinus spray—steroid. My repeated sinus infections have stopped. Rinsing daily is not fun—like semi-water boarding yourself. But hey, it worked, so what the heck.

  • You two are a beautiful couple!! An inspiration and Ollie, what can I say he is so handsome, love, hugs and prayers for you both and Ollie🥰❤️‼️🐳

  • Sandra Lucia Lini says:

    It's the sinus that make the lungs worse, at least for me. I always start getting stuffy and headaches and then my lungs get more junky. Plus I've got sinus polyps issues too!

  • I wish I could take over your pain for a week so that you could do everyday things that we take for granted: go for a run, take Peter to dinner and just never worry about any medical stuff. Sometimes all we need is a short break to recharge.

  • Jasper SLab IT says:

    i wanted to try home chef but they dont accept green dot prepaid 🙁 and i dont think the customer service rep got what i was saying soo maybe you can drop some hints like wow our viewers want to try you out but yall dont accept green dot

  • Danielle Crain says:

    I'm sorry about the sinuses. I have terrible sinuses and can commiserate, but I can't imagine that on top of the typical CF struggles you have. Prayers for you!

  • Hope you can take along for the house hunt. Good luck with the antibiotics and side effects. Doxy always wrecked my gut.

  • This may sound a bit off the wall but after years of sinus infections and surgeries and everything from rinses to IVs ro lasars and a few more ecotic therapies to clear out and shrink my sinuses to stop the collection of secretions that always turned into infection especially set off by seasonal stuff by ENT finally suggested that I try either chiropractic or facial massage on a weekly basis during the times of the year that I had my worst issues – not that it would cure anything or solve the issue but that some patients he had seemed to get better drainage going and had less problems with pressure and headaches and that when the sinuses drained better they seemed to have less infections which he thought did make sense. I found a chiropractor who knew he was not going to cure me but though that yes he could help my body do what it should be doing and he was in partnership in his office with a massage therapist that did practice facial massage. I go once a week for an "adjustment" and then a massage and its has made a huge difference or at least what I consider as one. Although I still did get infections I did get less of them and they were no longer back to back ones and even when I did have one I had a great deal more relief from problems like daily headaches and daily pressure in my face and forehead. I have actually ended up now rarely having to take even tylenol which considering liver issues is not a great thing to be taking anyway. Who knows if it would work or not but sometimes little alternative things, while not something that will bring about a cure or anything can make things easier and help your body support itself,

  • Megan Crilley says:

    Hi Mary and Peter, thanks for being a wonderful Christ-like couple to example love, compassion and kindness, gentleness etc. I am encouraged by your Joy in the midst of suffering and giving God all the glory. Bless you guys

  • Johanna Nyqvist says:

    just curious, once you (Mary) showed us your portable west, a black one witch you can bring with you wherever you go. But I noticed that you always use your old, violet(lilac) west….how come?? blessings to you both and Ollie boy! ❤

  • Marlene Andrade says:

    Hi kids, wow you have been so much. God Bless both of you. I have been praying for the two of you for a long time. Even if I don't get time to watch all your videos I always think about you two and pray for you. I am praying you find a nice home in NC and everything goes well there. Hope and prayer for Mary to find a great CF team to help with her ongoing care. You two are very special people. God Bless. Have a Great Week and smile. 🤗

  • Coralie Dubois says:

    I subscribed to one of these meal kit delivery services a few months ago and although I don't order a box every week, it does have its perks! The past two weeks I was very ill with double pneumonia and could barely walk from my bed to my bathroom so it goes without saying that a trip to the grocery store was impossible… I was so happy to just have to open my door and collect my box from the delivery guy! Plus doxycycline usually makes me sick to my stomach if I don't force myself to get something down with it.

  • Doxy is strong stuff in my experience (not CF, however was on it long term at one point.) Had an experience with it once while out in the hot sun and got badly sunburned, even with SPF 50 and a hat on…

  • I'm on doxicycline for a sinus infection and bronchitis. I hate how sick I'm feeling. It make me see how you live with these symptoms. You are a strong girl Mary. Praying you feel better.

  • Interesting convo on sinus issues ( I have been on a lot of meds for sinus problems) and I have other lung issues and always end up with pneumonia or bronchitis with any sinus infection… agree, wonder how they relate to each other…maybe on a cellular basis they are similar but then why does the med clear up the sinus and not the lung… anyway great discussion

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